Life with Complex Regional Pain Syndrome and the road to a Spinal Cord Stimulator
Saturday, November 7, 2009
Hard Week
Honestly, it is a scary thing. I certainly don't blame anyone when it gets worse. No one has a clue. But this week, I can't tie my shoes anymore or grip my toothbrush correctly with my left hand. These days I feel like I have so much more insight into my Deda's life when he had Parkinson's. My mind is fine but my body is not cooperating. I despise having to ask for help for everything in my life. I was the independent one, the one who moved to a new city and was making a life for myself. My life was on track, I was going to achieve my dream and be a vet. I do know now that being a regular vet isn't what my heart wanted but I still wanted to be a veterinary behaviorist. And now I have to depend on everyone else for the smallest of things. My Deda was a strong man who always cared for his family. Then the Parkinson's robbed him of that and I understand how he must have felt. I remember him always trying to do things when he shouldn't have. I understand why he did, I understand how frustrated he must have been every day when his body betrayed him. He has always been one of my heroes but now it is so much more so. Even during his worst times he still said "This too shall pass"
Sunday, November 1, 2009
On the road again....
This weekend was great. Saturday was Halloween and I went to trunk or treat with my Aunt Kay and cousin. I took Dixie with me and suspended the no petting rule and she was a huge hit. Not to mention, Dixie adores kids so she was in heaven. After that I went to my best friend's sister's house and hung out there. I got to see most of my favorite people and I had a great time!
Here is a picture of Lola, me and Dixie in our costumes:
Wednesday, October 28, 2009
At least I have a good excuse this time!
I have been ridiculously busy for someone who can't leave the house on her own. Last Thursday my mom's chihuahua found 2 kittens behind our pool pump. They were around 4 weeks old so we have been bottle feeding them (read: Mom and I have been bottle feeding them). They are doing very well and have started using the litterbox on their own consistently the past day or two! They will not be staying with us but we are fostering them until they are old enough to be adopted out.
The CRPS does seem to have spread to my entire left arm now. It sucks but there is nothing I can do about it. I'm going to an acupressure doctor in Atlanta next week so we will see how that goes.
Wednesday, October 21, 2009
Le sigh
Yesterday wasn't too bad, just a pretty lazy day.
Today my hand is partially swollen and really painful. This is a normal progression of CRPS but it just sucks. I lost what little use I have of my left upper body. It blows.
The girls are doing great. I got Dixie a princess costume and am waiting for Lola's matching witch costume to arrive. Both of their costumes have corset tops and I am wearing my Ren Faire outfit so we all kind of match. I'm pretty excited about getting a partial family picture in costume :-p
Saturday, October 17, 2009
I know, I know, my poor blog readers are neglected
Thursday I went to a local allergy doctor to get my Xolair injections transferred to them and they recommended I go to another urgent care because they were sure I had the flu. And they were right.
So I've been spending most of my time in my room in an effort to not make everyone else sick. And eating soup. Lots of soup. Because nausea is a part of it.
I did order Lola's Halloween costume today. Dixie already has hers and has pictures in her blog of her in it. I promise to upload pictures of Lola Belle too and eventually a group picture of all 3 of us in costume together.
Thursday, October 8, 2009
The downside of blog popularity
Thursday, October 1, 2009
Day 7: Treatment Plan
Wednesday, September 30, 2009
Day 6: Sorry I'm late!
Dixie's Story
Tuesday, September 29, 2009
Day 5: The joy of insurance
Monday, September 28, 2009
Day 3 and 4: Exercise and Hurry Up and Wait
Saturday, September 26, 2009
Day 2...sort of
Friday, September 25, 2009
Mayo Clinic Day 1
We got to Jacksonville around 5 yesterday and just hung out at the hotel because we were all exhausted. We've had no access problems with Dixie and she has done great! We couldn't get the internet figured out so I could only check my e-mail and get on Facebook from Mom's iPhone.
Today we had to be at Mayo at 8. We saw my main doctor (who supports holistic medicine and has been rated as one of the top 25 in the US the past 2 years) and he sent me to get bloodwork, a chest x-ray and an ekg today. He also referred me to an upper cervical chiropractor who did an adjustment and a cold laser treatment. She was wonderful as well and super gentle. I was decently out of alignment and it was much better after the treatment
Tomorrow we know I have a breast ultrasound (since breast cancer runs in our family) and a few other tests. I will see a pain psychologist, breast specialist and one or two other doctors. I'm seeing the chiro 3 times next week as well.
Dixie has done really really well and has made me so proud. It is really hard for her to watch the doctor mess with me because it hurts, but she hasn't been disruptive at all. We've got to tell so many people her story and everyone is surprised she came from a shelter.
Saturday, September 19, 2009
Dogs die every day for the greed of humans
Friday, September 18, 2009
Holy Cow, We're heading to Florida!
Saturday, September 12, 2009
My concept of a soulmate is much broader than most
Monday, September 7, 2009
It was a one step forward two step back kind of week.
Sunday, September 6, 2009
Please Vote for Lola and Laura
Saturday, August 29, 2009
Finally getting some forward motion
Sunday, August 16, 2009
Yea, its been a long time
Saturday, August 1, 2009
This is why I don't get my hopes up about doctors
Thursday Dixie was unable to go with us to my father's graduation. Unfortunately I had 2 separate attacks and severe heat exhaustion from trying to sleep off the attacks in the car with no A/C for a few hours. I now know how animals left in cars feel like and I can't imagine someone treating their dog that cruelly.
Friday I had an appointment with the orthopedic specialist who we all thought would be the one to figure me out. He didn't and gave up on me after an hour (a record). So we are seeing another doctor, but they can't get me in until October 13th!
It is really frustrating. I also realized that this upcoming week will mark 6 months since I first got sick. I certainly didn't think that this is how a seriously sore and swollen arm would work out.
This week is also going to be an intense training week for Dixie and I. I really need to get her certified sooner rather than later and I know she is up to a quicker pace. She also has a blog if anyone is interested in her journey to become a service dog.
Friday, July 17, 2009
Silver linings are always there, sometimes we just choose to ignore them
Thursday, July 9, 2009
The mystery illness sometimes gets in the way of blogging
Monday, June 29, 2009
I'm not dead yet! I think I'll go for a walk!
I am back from our yearly family beach trip (and family reunion). My family, my 2 aunts, 2 cousins and my uncle all go to Oak Island for a week and stay in a rent house. My Aunt Kay isn't in that picture but she was there. For the most part it was a good beach trip. My older cousin is a spoiled brat who refused to listen to anyone, even when it concerned her avoiding my arm. She is the blonde in the pink shirt on the far left. I avoided her most of the trip. The other little girl is my Mini Me that I adore and look at as my little sister. She was awesome this week and was very helpful if I needed anything. I spent a few hours on the beach most days and overall, it was a good week.
Thursday, June 18, 2009
Honestly, the end is not in sight.
Friday, June 12, 2009
A long overdue update
Wednesday, June 10, 2009
I'm an awful blogger some days
Tuesday, June 2, 2009
There is a reason I only have 4 periods a year
Saturday, May 30, 2009
Happy Gotcha Day Dixie!
Tuesday, May 26, 2009
Soul mates come in all shapes and sizes
Sunday, May 24, 2009
I'm a walking fault line
Saturday, May 23, 2009
My thoughts scatter with the breeze
Thursday, May 21, 2009
This illness is always an adventure
Monday, May 18, 2009
Saturday, May 16, 2009
Ah, irony
Wednesday, May 13, 2009
My animals are the bright spot in this illness
Saturday, May 9, 2009
If things had gone according to plan, I would have walked today
Sunday, May 3, 2009
Dear Mystery Illness, You SUCK!
Thursday, April 30, 2009
Sometimes I don't want to believe my ears
Saturday, April 25, 2009
I've been a bad, bad blogger
Monday, April 13, 2009
The Rainbow Bridge is brighter today
My brother's heart dog passed away today. Spot was 14 years old, which was truly amazing, since he was 114 lbs. He was a very special dog with an amazing personality. Everyone fell in love with him and he loved most people. He had a huge bark, but was a total chicken. He and Andrew fell for each other at our old church's bazaar when he was a wiggly hound puppy.
Walk With An Old Dog" -- by Gayl Jokiel
Because you will not be forever,
Hope against time though I may,
I paint your picture in my memory,
Eyes blue with age, muzzle gone gray.
Because you walked with me in Springtime,
Puppy-clumsy, running free.
As you grew, we grew together-
You became a part of me.
Because you shared with me my sorrows,
Not understanding- simply there.
Often spurring me to laughter—
My friend, you know how much I care.
Because the years have slowed your fleetness,
Though your spirit still is strong.
I promise I will take more time now,
So that you can go along.
Because you do not fear the future,
Living only in the now,
I draw strength from your example-
Yet time keeps slipping by somehow.
Because the day will soon be coming
When I will no longer see
You rise to greet me-but in memory
You will always walk with me.
The Rainbow Bridge
Just this side of heaven is a place called Rainbow Bridge.
When an animal dies that has been especially close to someone here, that pet goes to Rainbow Bridge.
There are meadows and hills for all of our special friends so they can run and play together.
There is plenty of food, water and sunshine, and our friends are warm and comfortable.
All the animals who had been ill and old are restored to health and vigor; those who were hurt or maimed are made whole and strong again, just as we remember them in our dreams of days and times gone by.
The animals are happy and content, except for one small thing; they each miss someone very special to them, who had to be left behind.
They all run and play together, but the day comes when one suddenly stops and looks into the distance. His bright eyes are intent; His eager body quivers. Suddenly he begins to run from the group, flying over the green grass, his legs carrying him faster and faster.
You have been spotted, and when you and your special friend finally meet, you cling together in joyous reunion, never to be parted again. The happy kisses rain upon your face; your hands again caress the beloved head, and you look once more into the trusting eyes of your pet, so long gone from your life but never absent from your heart.
Then you cross Rainbow Bridge together....
Author unknown...